Understanding the Voices of Lipedema:
Stories of Grace, Hope & Resilience

Description: This presentation is #7 in a Lipedema series called, "RADICAL EMBODIMENT: LIVING WELL WITH LIPEDEMA." To see replays of the other six, visit: https://lymphaticnetwork.org/symposium-series Presenters: Leslyn Keith, OTD, CLT-LANA & Siobhan Huggins Topics Covered: *lived experience of women with lipedema *the natural history of lipedema *women’s relationship with their own healthcare *a narrative of bravery and resilience *case studies As many know, the best way to learn is to listen. Siobhan and Leslyn will be presenting initial findings from Voices of Lipedema, our research into the lived experience of women with lipedema. This ongoing project is an effort to catalog the voices of women with lipedema, allowing them to express what they have struggled with, experienced, and learned from their journey. From common symptoms to experiences with medical providers, the experiences of those with the condition highlight areas that need additional focus in the coming years to help women with lipedema truly thrive and feel heard.

About the speaker: Leslyn Keith is a certified lymphedema therapist and has a Clinical Doctorate in Occupational Therapy with an emphasis on lymphedema and obesity. Dr. Keith has started four lymphedema therapy programs in California including two in private practice. She has treated lymphatic and fat disorders for over 20 years and currently researches, consults, and lectures on lymphedema, lipedema, and obesity nationally and internationally. She is the author of two books and published several articles about the efficacy of a ketogenic diet for lymphatic and fat disorders. Currently, Dr. Keith is Director of Research and Board President for The Lipedema Project and an instructor in lymphedema therapy for Klose Training and Consulting. Siobhan Huggins is an independent researcher focused on metabolic health and disease for over four years. Diagnosed with lipedema in 2021, she joined the board of the Lipedema Project as a Research Specialist. She presents at various conferences on lipedema pathophysiology and the mechanisms of why ketogenic diets may be uniquely beneficial for managing lipedema symptoms and progression.